Genre: Family, Rhyme, Sadness
by Chris Biscuiti
I will not let them look at you sadly
and I know how you want it so badly
to look at the stars and grab with your hands
to do little boy things your mind commands
You will get there son, I can see your will
you’ll ride rollercoasters just for the thrill
we will chant and scream for the New York Mets
when they break our hearts we’ll have no regrets
Today grandpa held you close on the couch
and grandma fed you another fruit pouch
she calls you her peach as you beg for more
mommy lights up as she comes through the door
I read you Goodnight Moon just before bed
as you doze off tonight I dream ahead
About the Poem:
My son Brayden was diagnosed with a rare seizure condition known as Infantile Spasms. He has since been treated and has been seizure free since he was 6 months old.
He is about to be 1 year-old on November 5th, and while he is severely developmentally delayed, we are just so blessed and so lucky to have a happy baby boy.
I wrote this poem about my dreams for Brayden, hopefully in some way this poem could shed some light onto an under-researched, unknown condition that is very serious and can really use the support and awareness that other conditions have.